Project to connect constituents with their US representatives to plea for the implementation of the "The National Plan To End Parkinson's Act"

URGENT: Help Push for Parkinson's Cure! 7 Minutes of Your Time Could Change Lives

Problem:

We're so close to fast-tracking potential cures for Parkinson's disease, but we're stuck in bureaucratic limbo. The National Plan to End Parkinson's Act was signed into law - a significant victory! While progress has been made in research, we need our collective voice to overcome the bureaucratic roadblock.

What's missing? Leadership! The Secretary of Health & Human Services hasn't appointed anyone to lead this crucial initiative.

• No advisory council has been formed
• No funding allocated
• No progress toward identifying and fast-tracking promising cures (like the Johns Hopkins PFFNB2 treatment)

Solution:

Here's where YOU come in!

Please reach out to your Congressman and Senators. Together, we can create a wave of constituent voices impossible to ignore! It's a simple but powerful action that can make a real difference. Every 6 minutes, someone in the United States is diagnosed with Parkinson's. We cannot afford to wait.

Here's what to do (it will take only 7 minutes):

1. Enter your address to find your Congressman, and both of your Senator's contact info here (please write all three): https://www.congress.gov/members/find-your-member
   Select "Contact".
2. Fill in your details (category: Health)
3. Copy the letter template below into the web-form and edit
4. Send your letter online!

Your voice matters. Each letter adds pressure to move this forward, bringing us one step closer to better treatments and, ultimately, a cure for Parkinson's disease.

Thank you for your continued support and engagement in this vital cause. Together, we can make a difference.

Please share this post. Each share multiplies our impact.

#EndParkinsons
#ParkinsonsAwareness
#LetterWritingCampaign

The Letter: (online web form)

PLEASE NOTE THERE ARE THREE EDITS IN BOLD TYPE FOR YOU TO MAKE IN THE LETTER. ONE IN THE SALUTATION, ONE IN THE 2ND TO LAST PARAGRAPH, AND YOUR NAME ON THE LAST LINE.

Subject: Urgent Action Needed - Implementation of National Plan to End Parkinson's Act

Dear Senator [or Congressman] [insert name here]
I am writing to you as a concerned constituent regarding the urgent need for action on 
the National Plan to End Parkinson's Act 
(https://www.congress.gov/bill/118th-congress/house-bill/2365). 

As you know, this vital legislation was signed into law on July 2, 2024, marking a 
significant step forward in our nation's fight against Parkinson's disease. 
However, critical next steps remain unrealized. 

Specifically, I am deeply concerned that the Secretary of Health and Human Services 
has yet to appoint a leader to spearhead this crucial initiative. 
This delay is holding up the formation of the advisory council and, consequently, the 
development and implementation of the strategic plan that could accelerate pathways to 
a cure for Parkinson's disease.

The Act's primary goal is to identify and expedite the most promising cure candidates 
for Parkinson's disease. 
For the over one million Americans living with Parkinson's - and the 90,000 newly 
diagnosed each year - every day of delay is a day too long.

I respectfully urge you to:

1) Contact the Secretary of HHS to emphasize the urgency of appointing a leader for
this initiative

2) Advocate for the swift formation of the advisory council as mandated by the Act

3) Push for timely allocation of funding to support the Act's implementation

The bipartisan support this Act received demonstrates our nation's commitment to ending 
Parkinson.s disease. 
Now, we need action to translate this commitment into tangible progress.

As my Senator [OR, Congressman], your voice carries significant weight. 
Please use it to advocate for the 1.5 million Americans affected by Parkinson's disease 
and their families. 
Time is of the essence, and your intervention could help accelerate the path to better 
treatments and, ultimately, a cure.

Thank you for your attention to this critical matter. 

I look forward to hearing about the steps you will take to help move this initiative forward.

Sincerely, [YOUR NAME]