Parkinson's Disease Resources and Links:

The following are links to resources to help those with Parkinson's disease.

Parkinson's Research Foundations and Charities:

• Michael J Fox Foundation for Parkinson's Research
• CureParkinsons.ork.uk - The Cure Parkinson's Trust (funds research)
• Parkinson's Foundation
  Telephone help line: 1-800-4PD-INFO or 1-800-473-4636 or helpline@parkinson.org
• American Parkinson Disease Association (APDA) patient services, education and awareness, research
  Telephone help line: 1-800-223-27323 or apda@apdaparkinson.org
• Parkinson's Foundation of the National Capital Area (PFNCA) local regional charity
• Parkinson's Alliance
• Brian Grant Foundation - founded by NBA player. Focused on nutrition and exercise
• Parkinson's Canada
• Parkinson's Australia
• Shake it up Australia
• European Parkinson's Disease Association (EPDA) information, awareness, advocates for policy change
• Parkinson's UK
  Telephone help line: 0808-800-003
• ParkinsonNet - Netherlands - charitable services for those with Parkinson's
• Dutch Parkinson's Disease Association - Netherlands

Neurological Diseases Charities:

• Funding Neuro

Educational Academies:

• Neurology Academy
• Parkinson’s Academy

Organizations, Information, News and Help:

• Parkinson's News Today
• International Parkinson and Movement Disorder Society - professional society of clinicians, scientists, and other healthcare professionals who are interested in Parkinson's disease and related neurodegenerative disorders
• Journey With Parkinson's - general and scientific articles
• Davis Phinney foundation For Parkinson's - Articles, webinars, discussions
• PdLink.com - Parkinson's Association of Alabama information website
• European Parkinson's Disease Association (EPDA)

Support Groups:

• Parkinson's Helpline 1-800-4PD-INFO (1-800-473-4636) to find a support group near you.
• Well Connected - A virtual community that offers phone and online activities that build community through group conversations, games, and education.

Blogs:

• Twitchy Woman - Sharon Krischer tips and insights
• The Perky Parkie - Allison Smith shares her humor
• A Soft Voice in a Noisy World - Karl Robb sensitivity and inspiration

Scientific and Research Resources:

• Fox DEN: Data Exploration Network - MJFF research tool and datasets (genetic, questionnaires, ...)
• AMP-PD: Accelerating Medicines Partnership - Parkinson's Disease - shared database for biomarker discovery and therapy development.
  Genome sequencing data, clinical datasets, RNA resources, computing and API access, etc
• Science Of Parkinson's - educational, blog style
• PdCure.org - That's us! Information for Parkinson's patients and caregivers about how to potentially help one's condition based on research studies
• Data Registries:
  • California Parkinson's Disease Registry
  • Nebraska Department of Health and Human Services: Parkinson's Disease Registry
  • Utah Department of Health: Parkinson Disease Registry
  • OpenNeuro.org - shared research data (MRI, PET, MEG, EEG, iEEG) Stanford
  • NeuroMorpho.org - digital datasets of neuron and glia models
• Jove.com - videos and papers on tutorials for laboratory methods and science concepts. How to accomplish various biotech laboratory tasks.

Parkinson's Research Centers:

• Parkinson's Institute and Clinical Center
• University of California, San Diego
• Massachusetts General Hospital (Harvard affiliate)

Publications, Journals and Magazines:

• New England Journal of Medicine
• Nature - London England
  • Nature Neuroscience
• Cell Press
  • Neuron
  • Cell Stem Cell
• Alternative Medicine Review
• Autophagy Journal
• Brain Research
• Expert Reviews in Molecular Medicine
• Movement Disorders Journal - published online by The International Parkinson and Movement Disorder Society (MDS)
• Journal of Biological Chemistry (JBC)
• Journal of Neurological Sciences
• JNeurosci: The Journal of Neuroscience - Society for Neuroscience
• Neurology, neurosurgery and Psychiatry
• Parkinsonism and Related Disorders
• Progress In Neurobiology
• International Journal of Epidemiology
• ASCPT - American Society for Clinical Pharmacology and Therapeutics
  Three journals:
  • Clinical Pharmacology & Therapeutics
  • CPT: Pharmacometrics & Systems Pharmacology
  • Clinical and Translational Science
• BMC - BioMedical Central journals
  • Journal of Neuroinflammation
• The Lancet: Neurology
• PNAS - Proceedings of the National Academy of Sciences of the United States of America
• Clinical Toxicology (search)

Aggregation and search sites for Publications, Journals and Magazines:

• NIH: NCBI - National Institute of Health: National Center for Biotechnology Information
  • NIH: PMC - National Institute of Health: US National Library of Medicine
• Science Direct - search and access portal for research papers
• Sci-Hub - Open access to research papers typically paywalled by publishers
• DOI.org - Digital Object Identifier registration/look-up for research papers

Books:

A Prescription for Action, Ending Parkinson's Disease by Ray Dorsey MD, Todd Sherer PhD, et al. | Mar 17, 2020 ISBN-13: 978-1541724525 Written by four leading doctors and advocates offer a bold action plan to prevent, care for, and treat Parkinson's disease-one of the great health challenges of our time. The book associates the growing global use of neurotoxins and the rise of Parkinson's disease and makes a call to action to rid the planet of its root causes. Ending Parkinson's Disease book website New York Times Health Commentary and Book Review